Ken hoped to raise $1 million with his Hollywood party, but instead, he doubled that amount! "We raised over $2 million," he says. "We're going to keep on giving, so I encourage everybody to keep helping us to give."

Andrea Pett-Joseph, the executive vice president of the EB Medical Research Foundation, is also a mother who knows firsthand how EB can affect a family. Her 4-year-old son, Brandon, is living with the skin disease.

All the money raised will help Andrea's foundation find a cure. "It's an amazing gift for the families who struggle with EB," she says. "It really gives us hope that we can get closer to a cure and not be discouraged by what we have to endure every day."