14 Health Heroes Who Are Changing Healthcare As We Know It
The Can-Do Donor
DePanfilis was shocked at how simple “getting on there” turned out to be: All she had to do was sign up and swab her cheek. It was unlikely that she’d be this patient’s bone marrow soul mate, but maybe she could help someone else. She just didn’t imagine she’d get the chance so quickly. Not long after being swabbed, DePanfilis got a call about a potential recipient: a 6-month-old boy born without an immune system—meaning one cold could become life-threatening pneumonia. Within six months, she was checked in to the hospital as his anonymous transplant donor.
For the procedure, done under general anesthesia, doctors used a needle to withdraw marrow from DePanfilis’s pelvic bone. She was told the median recovery time is 20 days and can include muscle pain and fatigue, but she had only some soreness. “Honestly, the next day, I went out shopping,” she says. The boy who received her bone marrow cells is now thriving and able to run around the playground like other kids.
DePanfilis was so energized by the experience that she started volunteering at registry events, and last year she launched her own at Norwalk Hospital. “One couple drove 45 minutes just to get swabbed,” she says. In a single day, approximately 50 potential donors signed up—more than twice the average for one of these events—and swab kits were given to at least 30 more. Every year there are 20,000 people who might benefit from a bone marrow or umbilical cord blood transplant, according to the Department of Health and Human Services, so the more potential donors, the better—especially when you consider that 70 percent of patients who require a transplant need to look beyond their family for a donor. “When you say ‘needle’ and ‘pelvic area,’ people get nervous,” DePanfilis says. “But I want everyone to know how easy giving this gift can be.”