Oprah traveled to California to spend an afternoon with Jani and her parents, and after an hour, she said she was exhausted. "I just marveled at what it takes to keep her alive," she says. "And as you had said to me, Michael, your number one goal is to keep her alive and keep her happy."

Watch Oprah talk with Jani about Calalini. Watch

While some people have good days and bad days, Michael says their lives have been compressed into moments.

"The moment is really all that we have," he says. "We're trying to give her as many happy moments as we can. ... She's already tried to kill herself a couple of times. We want her to feel that our world has enough to offer her so that she wants to stick it out."


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