Comprehensive Caregiving Resources
AARP Caregiving Resource Center: www.aarp.org/caregiving or 1-877-333-5885 Your one-stop shop for information, tools, and resources while caring for a loved one. For Spanish language resources, visit www.aarp.org/cuidar or call 1-888-971-2013.
AARP Advance Directive Forms: www.aarp.org/advancedirectives Free, downloadable state-specific advance directive forms and instructions.
AARP Long-Term Care Cost Calculator: www.aarp.org/longtermcarecosts Find and compare the costs of home care, assisted living and other services throughout the United States.
Aging with Dignity: www.agingwithdignity.org or 1-888-5WISHES (1-888-594-7437) Information and instruction on developing a living will and having conversations with family.
Administration on Aging (AoA): www.aoa.gov
The federal agency responsible for advancing the concerns and interests of older people. The website has a variety of tools and information for elders and their caregivers.
Alzheimer’s Association: www.alz.org or 1-800-272-3900 Resources, tools, and a 24-hour helpline for people with Alzheimer’s disease and their families.
American Bar Association Commission on Law and Aging: http://new.abanet.org/aging
Information on legal issues effecting older adults and referrals to lawyers in your area.
Assisted Living Federation of America: www.alfa.org
Information and resources on assisted living options and how to find them.
Caring Connections: www.caringinfo.org A national engagement initiative to improve care at the end of life.
Centers for Medicare & Medicaid Services: www.cms.gov
For Medicare: www.medicare.gov/caregivers or 1-800-633-4227
Helpful consumer information on eligibility and benefits. Online tools help you search and compare nursing homes, hospitals, home health agencies, health plans, and Medicare prescription drug plans in your area. The tools also rate performance.
Department of Veterans Affairs: www.va.gov or 1-800-827-1000 Information about eligibility and benefits for veterans and their families.
Eldercare Locator: www.eldercare.gov or 1-800-677-1116 A national public service that connects you with local resources for older people and their caregivers.
Family Caregiver Alliance: www.caregiver.org or 1-800-445-8106 Tools and resources for family caregivers and a Family Care Navigator with information on services in your state.
LeadingAge: www.leadingage.org Consumer information on long-term care facilities and services, and how to access them.
National Adult Protective Services Association:
Find public adult protective services agencies in every state and D.C. Consumers can report abuse online. Immediate dangerous situations should be directed to 911 or local police.
National Alliance for Caregiving: www.caregiving.org
This organization offers research and reviews books, videos, websites, and other material to help family caregivers and professionals.
National Alliance for Hispanic Health: www.hispanichealth.org or 1-866-783-2645 The Hispanic Family Health Helpline and its Su Familia provide free and confidential health information for Hispanic families.
4a: www.n4a.org/answers-on-aging A membership organization of local Area Agencies on Aging and Title VI programs. Provides answers to questions about home- and community-based services for seniors and family caregivers.
National Association of Professional Geriatric Care Managers: www.caremanager.org This association can help you find a private geriatric care manager in your community.
National Association for Home Care & Hospice: www.nahc.org/consumer/home.html Consumer information on how to select a home care provider or hospice.
National Association of Home Builders: www.nahb.org/caps or 1-800-368-5242 A Web-based directory of Certified Aging-in-Place Specialists who can identify and/or provide home modifications that make a home accessible, safer, and more comfortable.
National Family Caregivers Association: www.thefamilycaregiver.org or 1-800-896-3650 Information, educational materials, and support for family caregivers.
National Hospice and Palliative Care Organization: www.nhpco.org or 1-800-658-8898 Free consumer information on hospice care and puts the public in direct contact with hospice programs.
National Long-Term Care Ombudsman Resource Center: www.ltcombudsman.org An organization that connects you with a local ombudsman, who is a person advocating for quality care for residents of nursing homes and other long-term care facilities, and helping to resolve complaints.
National Respite Locator: www.archrespite.org A service that helps people locate respite services.
NIH Senior Health: www.nihseniorhealth.gov or 1-800-222-2225 Fact sheets from the U.S. National Institutes of Health on a range of health topics can be viewed online or ordered for free.
Pioneer Network: www.pioneernetwork.net/consumers An organization working to transform long-term care services to be more responsive to every person’s unique needs.
SAGECAP: www.sageusa.org/sagecap An organization providing counseling, information, support groups and more to gay, lesbian, bisexual and transgender caregivers.
Social Security Administration: www.ssa.gov or 1-800-772-1213 Information on eligibility and benefits is available from 7 a.m. to 7 p.m., Monday through Friday.
State Health Insurance Assistance Program (SHIP): www.shiptalk.org Your local SHIP offers one-on-one counseling assistance for people with Medicare and their families. Go to the website or call Medicare at 1-800-633-4227 to find your state SHIP.
The Consumer Voice for Quality Long-term Care: www.theconsumervoice.org/familymember An organization working to improve the lives of people in nursing homes and other long-term care facilities. Find a local ombudsman online.
Village to Village Network: www.vtvnetwork.org An organization that helps communities start Villages, which are membership-based groups that respond to the needs of older people within a geographic area. Find Villages across the U.S. online.