Now cancer-free, Roger's back to his busy schedule. With his wife, Chaz, by his side, Roger often starts his day at a movie screening. "We see anywhere from two to four movies in a day," she says. "I need to be near him so in case he needs anything, I can look and he can give me a signal."
Spend a day with Roger and Chaz.
Roger and Chaz communicate through special signals they've developed. If Roger wants Chaz to relay a message to someone, he sometimes writes what he wants to say on a piece of paper. When he has his computer, Roger can type what he wants to say, hit a button and the computer says it for him. When he holds his hand over his heart, he's telling Chaz he loves her.
At mealtimes, Chaz usually eats alone in the dining room. "I don't like to eat in front of him because it just seems kind of cruel since he can no longer eat," she says. "When he lost his jaw, he lost the lower floor of his mouth. And so if he ate, there's nothing to support it."
Roger gets his nourishment about four times a day intravenously. "He has his meals in a gravity drip bag suspended from this IV pole and connected to a tube that goes through a port in his stomach," Chaz says.
Roger says he doesn't miss food as much as he misses the camaraderie of a meal. "However, every now and then, he wants me to eat something that he used to like," Chaz says. "He likes to watch me eat it."