Behind the Scenes - Living with Childhood Schizophrenia
Every night when I went back to my hotel room, I was extremely exhausted but could not stop thinking about the family because I knew that eventually I would get on a plane and go back to Chicago. It made me sad that I could not be there to help them indefinitely. Because when you are there, even for a short amount of time, you can grasp how chaotic and constant their lives are. Jani constantly has to be engaged to distract her from her hallucinations. So I saw how laborious it is for her parents to constantly keep her engaged. They don't have much time to daydream or focus on anything else in fear that in one unattended moment, Jani could potentially hurt herself or Bodhi. I learned a lot from Michael and Susan. I saw parents who worked hard every day just to keep their kids alive and safe...no matter what it took. After spending a week with them, I couldn't get over how difficult a situation like this is on a marriage. I witnessed some of their good times and some of their bad times, but at the end of the day, I could see love. You could tell that they really respect one another, but more importantly, how much they need each other to make it through the day. In the end, they really lean on one another because only they as parents know what Jani and Bodhi need.