I see all that you guys do for children all over the world and that is awesome. for example Oprah, helping out kids in Africa. But, I do have something to ask...What about Oprah's people here in the states. Not just black people, but whites, latinos, american indians, and asians. I mean I hear about all the money that Oprah spends helping out people in Africa. But about people here in the states, with all the money that she has why not spend more for her people here in the states. what about other countries like asia and mexico. I dont hear anythings about Oprah helping them out. With about other movie starts and other singers that Oprah has contact with. Im sure the influence that oprah has they all can help other people. What about the recession that the united states is going through, with all the millions and millions of dollars that Oprah and other movie stars and other singers has. I sure they can do alot. And Charities like United way and other organiazations that are out there claiming to help people but instead pocket the majority of the money paying CEO's and high board members. Why not just give money to directly to the people. People like familes that are losing there homes.
I've heard that Oprah will be featuring a family who had a child born with Trisomy 18. It is about time more attention is brought to this genetic diorder. I am happy that the family got to share 99 days with their son. My niece is a true miracle as well she turned 5 years old just yesterday and I think Oprah would love to meet her. She is amazing and could bring hope to more parents with children who have Trisomy 18. She was diagnosised before birth and continues everyday to go above and beyond anything doctors could have ever predicted. She goes to school, dance classes and horse back ricding just to name a few. She is a miracle and a joy. She lights up everyones life she comes in contact with, I am blessed to be able to call her family.
God Bless everyone who is touched by Trisomy 18 and I wish Oprah had my niece on her show for Miracle children because I know she could inspire hope in so many people. Grace is truly a miracle.
HELLO IM DEBBIE MERLINO I JUST WATCHED THE VIDEO ON TRISOMY SYNDROME 18 I HAD A DAUGHTER IN 1982 MELYSSA ELIZABETH HOGAN SHE LIVED FROM MAY 12 TO JUNE 22 I DONT HAVE VERY MANY PICTURES AND I WISH I DID IM TOUCHED BY THE WAY THEY HANDLED IT I DIDNT DO THAT I WAS 23 AND HAD ANTHER DAUGHTER WHO WAS 18 MONTHS AT THE TIME AND HAVE HAD TWO CHILDREN SINCE THEN PERFECTLY HEALTHY BOY AND GIRL WHO ALL THREE ARE NOW 28 23 AND 21 THEY DIDNT KNOW ANYTHING ABOUT IT THEN EXCEPT SHE WOULDNT SURVIVE THEY TOLD ME AT TEN DAYS OLD TO TAKE HER HOME TO DIE I COULD HOLD HER AN D LOVE HER THERE AND I DID ITS WAS EXCRUTIATING FOR US. MY CHLDREN TWO NEVER MET HER THE OLDEST DOESNT REMEMBER BUT ALL THREE HAVE A SPECIAL PLACE IN THERE HEART FOR HER . U CAN IMAGINE THE VIDEO BROUGHT ME TO HISTERICS I HAVE NEVER COMPETELY BROKEM DOWN OVER HER LOSS AS I WAS AFRAID I WOULD NEVER STOP ITS BEEN 26 AND A HALF YEARS AND I STILL MISS HER . I WAS MARRIED TO HER FATHER AT THE TIME AND OUR MARRIAGE DID NOT SURVIVE THANK YOU FOR LISTENING. DEBBIE FROM PONTIAC IL
I was also very happy to see this. My son was born August 6, 2006 with trisomy 13 (very similar to trisomy 18) and lived for 17 days. I was so happy to have him for those 17 days as the doctors said he should not have even been born. We did not know anything was wrong until after he was born so had no time to plan for this. We have had many other mothers with babies with trisomy 13 try to get Oprah to have our families on to bring this info to more families. There are so many more children out there with these genetic abnormalities living and happy. I have also gone on to have a beautiful and healthy baby girl since Alex's death and she is now 5 months old. I want to wish this family all the best with the new baby!!!
I had a daughter who was born with Trisomy 18 over 5 years ago. I had never heard of Trisomy 18 until we found out our unborn daughter had it. I searched on the web and found The Trisomy 18 Foundation. Through those wonderful people I received the support, information and encouragement I needed to face her birth and death.
I am so glad that more people are becoming aware of Trisomy 18 even though we still have a long way to go. Eliot's story and many more like his can be found at the Trisomy 18 Foundation web site. We need to bring awareness and help these babies born with Trisomy 18!
I find it very hypocritical that Oprah can break out in tears about disabled and dying children, yet she supports a presidential candidate who advocates infanticide. Yes, Barack Obama voted against a law in the state of Ohio that would provide life saving measures for infants who survived an abortion stating that doing so would "go against the intentions of the mother." This was a law already passed by the feds, yet Obama voted against it for his state. So these poor infants are brought to a soiled utility room to die a slow, painful death. Unbelievable.
I was once a regular viewer of the Oprah show, but will no longer watch her show. She should be ashamed.
I'll be very surprised if this post makes it past the "previewers," so I know I'm typing this in vain.
Thank you Oprah for showing attention to miracle children who are not "normal". As a mother of a special needs child, my entire being smiled during the updates on all of the featured children. I truly appreciate the strength of every family. As the blog from Eliot's dad played, I found myself reliving my own experiences with life in the hospital, tube feedings, etc. I had not seen the blog on U-tube and found myself experiencing the same raw emotion as Oprah and Celine. I am so proud of Eliot's parents for their strength , but mostly for the unconditional love they showed to Eliot during his short life. It's hard to put yourself last and "be sad later" when you are aware of the prognosis. I do still have my little miracle, Brooke, who just turned 6 years old last month. Even though she cannot talk, or do anything for herself, I now have a renewed strength and can worry about being sad later. As human beings, we always want to know why things happen as they do. I like to think God trusted me enough to take care of one of his most special angels who may, one day, draw someone else closer to him through her. Thank you!!
Matt and Ginny...what special parents! Eliot was so lucky to be your son. May you and your future child have all the happiness you deserve.
I rarely show emotion. I watched that Oprah show and the tissues were used.
All the best...I'll keep your family in my thoughts and prayers.
drde1957@AOL.COM
This is someone that just got home from work today and saw the trisomy 18 baby story. Tomorrow Oct 30th would have been my grandson's 6th birthday, he had Trisomy 13. We had Braxton for 33 days, we also celebrated his 30th day birthday with a party and cake and lots of photos. He had an older sister as well. We had no knowledge that anything was wrong with our baby until he was delivered, 6lbs 8oz. blond hair blue eyes, with everything that could be wrong was wrong. They gave my son and daughter in law no hope at all, but if you have faith, especially when the doctors tell you he should never have been born, you still have all the hope in the world. My son was an Iron Worker, so his hands were always used for welding. When they brought our Braxton home, he became the most gentleless person I ever saw. He was willing to do whatever it took to take care of his little boy. I remember how active he was, he just squarmed and squarmed to see his sister as she danced around him, he heard his daddy come through the door and say "Hey Boy", the good Lord sure blessed us all with this little fellow. We never received any hope or encouragement from the hospital or doctors at anytime. Amost
eleven months later,On 911 -Sept 11, 2003, the Lord decided to take my son home to be with his baby Braxton. He was kill in a tractor accident. He left behind an 8 year old little girl and a wife 5 months pregnant with our now Aiden Boyd. He never got to meet his daddy, and he looks so much like his daddy, its like God gave me my son back. So now, I have the peace that my son is in Heaven rocking his healthy baby Braxton as he waits for all of us to join him in Heaven. It will be some reunion when we all get there.
I think our little Braxton just wanted to see his family. He sure warmed our hearts with his short presence.
Just wanted to share with you all.
NANNAN05
Without a doubt tears were mandatory in Ginny and Matt's story. I myself gave birth to my first child June 21st 08' 5 weeks early. I named her Ellie Claire, if a boy was there he was going to be Elliot James. Nothing was wrong with her AT ALL. Perfectly healthy. I was diagnosed with extreme depression and anxiety summer of 2007, at the age of 26. Then I became pregnant. To see these two most happy living parents/individuals, take on such a roll of providing and knowing there is an end just around the corner. I can give them the most praise for something I have ever seen someone take on. And how they inspired me to know what I have in front of me. It gets hard with my enbalances, but I know now, its going to be allright. Thanks to this show. Those are the kinda of people the world should be surrounded by. Hopeful, Truthful, Humble, Grateful, Loveing people. I love the emotion that was delivered as well!
What an inspiring segment, OPRAH & CELINE! Words don't seem enough at
times...BUT TEARS...YES!! They transcend!! Only tears can reduce us to the
amazing and final moment of understanding another's feelings. It is that final
release and surrender to our humanness, our connection to another's grief,
sorrow, joy and happiness. Preserver my dear, dear friends. Do not be at all
embarrassed or hindered by your humanness. REJOICE!! AND DELIGHT IN THIS
WONDERFUL CONNECTION TO ALL THINGS HUMAN.
My son Dylan was born January 5, 2008 with Trisomy 21, which is a form of Down Syndrome. We did not know that he had Trisomy 21 until after he was born. While I was watching the video about the little boy with Trisomy 18, it took me back to the four months we spent in the hospital with Dylan and how those emotions came flooding back. While my son will likely have a full life, theirs did not and yet they celebrated his life everyday, what an inspiration. I am reminded that I need to be grateful and celebrate the specialness of my son everyday. Dylan has been a great blessing to our family and he amazes us with how smart he is and what a miracle he is. It has been a hard road for us and I haven't always celebrated my sons specialness, but after seeing the video today I will rejoice daily in my precious boy. Thank you Oprah for sharing the stories of all these miracle children, they are true blessings.
Thank you Oprah for this story-it has touched home so much and I am proud to have lived in the generation of YOU. I lost my little girl at the age of 12 and I am lucky to have had her in my life. Children are the teachers we are the students and you can either be an aware student or you can just pass through class asleep. Today I met some great students and teachers on your show. Thank you again.