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789 Replies Last post: May 1, 2008 2:52 AM by momofajcc
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Jenny McCarthy and Holly Robinson Peete's Fight to Save Their Sons

Sep 18, 2007 6:33 PM

Click to view harpobear's profile harpobear 2,021 posts since
Sep 8, 2007
What would you do if your child stopped speaking, wouldn't look you in the eye and completely ignored the world around them? In their first television interviews discussing autism, actresses Jenny McCarthy and Holly Robinson Peete share their fight to save their sons. Find out what to do when autism strikes. Don't miss this wake-up call for all parents.

Have a question about parenting an autistic child? Jenny McCarthy and Holly Robinson Peete are here to help. Talk to Jenny and Holly!
Click to view hludlow291's profile hludlow291 7 posts since
Sep 14, 2007
Reply 1. Re: Jenny McCarthy and Holly Robinson Peete's Fight to Save Their Sons Sep 14, 2007 1:29 PM

Hi my name is Helen

I have a son with HFA he is 7 years old. His name is Jacob and he is so bright. We just found out he is autistic and are not sure what to do or where to go. He has always showed odd behaviors. I can not stress this enough to other mom's and dad out there. You must go with your gut feeling on this. What my husband and I did not know is we actually helped this little boy with out even knowing it. Since he was 2 we made sure to sign this kid up for everything from Gymboree to soccer, swiming, basketball, and Boy Scouts. We have him in a Catholic school where he is doing very well. Now that we have the diagnosis we know what needs to be done. There are others out there like him. Can't wait for the show. What the media dosn't show are the kids with HFA. Please show more. Thanks

Click to view yoshiyoshi's profile yoshiyoshi 61 posts since
Sep 14, 2007
Reply 2. Re: Jenny McCarthy and Holly Robinson Peete's Fight to Save Their Sons Sep 14, 2007 2:20 PM
I can tell you what I wouldn't do. I wouldn't stop treating that son as a person, deserving of love and respect as any other child. I wouldn't push them to become what is my idea of normal, like many parents of Autistic children belive is a "cure" for Autism. I wouldn't drag my child on TV, and talk about how upsetting their way of being is, as if they aren't there and do not have a soul. Just because Autistic children can't speak, doesn't mean they cannot hear. It also does not mean they cannot feel.

Autism is not a disease, it's a different way of thinking. It might be heartbreaking to a "normal" person, when their child isn't behaving just like them. Instead of trying to "cure" them, there should be understanding. Most Autistic children find eye-contact difficult or upsetting. This doesn't mean they are "ignoring the world", it means they are not giving you what you consider is proper to communicate. Forcing Autistic children to behave in a Neurotypical ("normal") way does nothing but upset them, and send the message that there is something wrong with them. Imagine everyday if you woke up and heard messages on TV saying how behaving the way you naturally do is wrong and unnatural? I don't think you'd be happy with that message. This is what Autistic children hear everyday.

How about instead of showing a ad with Jenny McCarthy crying over her son, show something positive like her spending time with her son being happy. Or does that not get the same ratings as portraying Autism as a horrible affliction, and that the children who have it are hopeless. You cannot say someone is hopeless before you try to help them, most Autistic children do not get the help or the stimulation Neurotypical children do. Most parents seem to feel with Autism all they can do is throw their hands up in the air and say, "Well what's the point, it's not like they can learn anyways." Programs showing only the negative aspects of Autism, reinforce the stigma that those on the Autism spectrum are a lost cause. The first part to a plan of Genocide is to dehumanize the group of people who you are trying to get rid of. Acting as if Autistic children are less than human because they don't meet the "normal" requirements is dehumanizing them.


You may have seen Amanda on CNN. She did a show about Autism with Sanjay Gupta. She does not speak, she uses a keyboard to communicate. Yet she is smarter than most Neurotypical people that I know. If her parents had belived the propaganda constantly spouted about Autism being a lost cause, they might not have taken the time to help teach her things so that she would become the intelligent woman she is today. It is amazing how just not having one simple skill, the ability of speech, means that person must be no more intelligent than a newborn. Perhaps one day people will not be so prejudiced towards those who are Neurodiverse. Until then please keep the negativity to yourself.
Click to view hludlow291's profile hludlow291 7 posts since
Sep 14, 2007
Reply 3. Re: Jenny McCarthy and Holly Robinson Peete's Fight to Save Their Sons Sep 14, 2007 3:14 PM

I know how I felt when we received the diagnosis. To be honest some days you wish your child could be like all the rest especially those busy days, where it takes you 30 min to get socks on or how about the toll it takes on your family especial of you live in middle class america where you are living pay check to pay check. Try going on a debt diet then. I know that in today's society the world is a very unjust place. I to would like to see a show about the positives but for now we have to make people awhere of what is doing on.

I love both of my children very much. There is nothing in this world to me more important. It is very easy for these Hollywood stars to tell there stories but they have the money to. My husband and I make less the $60, 000 a year. We both work full time. We do not have all the comforts as Celebrities. I can tell you we try very hard, but awherness is the key and services to those that can not afford them. Tution is high, it is a sacrifice for my husband and I. We go with out only to give our children the best education possible for them.

Click to view yoshiyoshi's profile yoshiyoshi 61 posts since
Sep 14, 2007
Reply 4. Re: Jenny McCarthy and Holly Robinson Peete's Fight to Save Their Sons Sep 14, 2007 11:25 PM
in response to: hludlow291
It seems your problems are more about money, than your son having Autism. There are other ways of getting money, than spreading the awareness of how devistating Autism is. I'm sorry about your position. I don't see where the issue over the right to Neurodiversity is an issue. The world is a very unjust place, you can help change that by discussing the positives of Autism on boards like this one. Even though I know wallowing in the negativity is a easier way to get money.
Click to view frostfrost's profile frostfrost 1 posts since
Sep 15, 2007
Reply 5. Re: Jenny McCarthy and Holly Robinson Peete's Fight to Save Their Sons Sep 15, 2007 5:18 PM
JUST WANT ALL OF YOU OUT THERE WITH AUTISITIC CHILDREN THAT THERE IS ALWAYS HOPE. EARLY DIAGNOSIS CERTAINLY IS A WONDERFUL THING BUT NOT ALWAYS DOES THIS HAPPEN AS WE TEND TO LOOK AWAY AT FIRST. MY SON IS NOW 26 A COLLEGE GRADUATE WITH AFULL TIME
JOB. HE HAS ALWAYS BEEN TAUGHT, DO IT BECAUSE YOU CAN. I HAVE NEVER EVER TOLD HIM YOU CANNOT DO WHATEVER YOU SET YOUR MIND TO. OF COURSE THIS TOOK YEARS, BUT LET ME TELL YOU IT IS SO SO WORTH IT. THANK YOU FOR LISTENING TO A VERY PROUD MOTHER WITH A
CHILD THAT HAS ASPERGER'S SYNDROME.
LORETTA FROST
frosty.0823@yahoo.com
Click to view yoshiyoshi's profile yoshiyoshi 61 posts since
Sep 14, 2007
Reply 6. Re: Jenny McCarthy and Holly Robinson Peete's Fight to Save Their Sons Sep 16, 2007 3:56 AM
Frost, nice to hear from a parent who decided to raise their child by looking at their attributes, rather than their lack therof. There is always hope, the hope that one day the media might get past the lucrative raiting grabbing shows, of showing what a tragedy Autism is. That people with Autism and Asperger's Syndrome can live a life, without being seen as an object of pity, that they will be seen as a human being. Just as much as Neurotypicals are.
Click to view mom26kids's profile mom26kids 1 posts since
Sep 16, 2007
Reply 7. Re: Jenny McCarthy and Holly Robinson Peete's Fight to Save Their Sons Sep 16, 2007 9:55 AM
I am the mother to 6 children, 5 of them are on the Autism Spectrum. When Ms. McCarthy made the comment of "dying inside" in front of her son, she not only did a great disservice to him, but to all parent's who in the future get the diagnosis. When is Oprah going to do a show on the beauty that is Autism....not the dramatic Hollywood side, but the everyday side.??? Our children attend public schools. They are accepted by our community and thrive. They all are very good students. We do not have behavior problems...no meltdowns, no temper tantrums, no aggressions.... My husband and I continued to parent our children after the diagnosis. We have remarkable children....it is my responsibility for them to be prepared for the world...but also, for me to prepare the world for them.
Click to view yoshiyoshi's profile yoshiyoshi 61 posts since
Sep 14, 2007
Reply 8. Re: Jenny McCarthy and Holly Robinson Peete's Fight to Save Their Sons Sep 16, 2007 12:34 PM
in response to: mom26kids
Excellent post mom. I'd like to know when they'll decide to take the bullies, oops I mean "conduct disordered" kids out of Special Ed. If bullies need classes specially tailored to them, putting them in a area with perspective victims is not the way to do it.
Click to view yoshiyoshi's profile yoshiyoshi 61 posts since
Sep 14, 2007
Reply 9. Re: Jenny McCarthy and Holly Robinson Peete's Fight to Save Their Sons Sep 17, 2007 12:21 AM
Nnaylor, you said there are highs and lows on this ride. Shows like the one Jenny is participating in only focuses on the lows. The reason I singled her out, is because I would think she wouldn't be so ignorant as to join up with these curbie groups, who desire to cure the world of Autism by genetically exterminating Autism from humanity. Another term used for this type of attitude towards people, is called Genocide. Also given Jenny's past in being in the media, one would think it seems a part of this is about her getting the limelight. You don't get your face on TV, for saying Autistic children are diffferent, and they might have unique challenges that others don't, yet they are not a lost cause. We no longer find it suitable to call people who use crutches or wheelchairs cripples, yet at one time people did. I'm trying to see to it that we have a day where Autistic children are no longer seen as non-exsistant, and therfore treated as such. How would you feel if all anyone said about you is what a tragedy your life is, and how you'd be better off dead?
Click to view lariedg's profile lariedg 1 posts since
Sep 16, 2007
Reply 10. Re: Jenny McCarthy and Holly Robinson Peete's Fight to Save Their Sons Sep 17, 2007 8:46 AM
I would really like to see a show focus on the entire SPECTRUM and the varying degrees and types of 'autism'. Please talk about High-functioning and Aspergers and how different they are from other forms of autism. These children are caught in the middle and are usually the most misunderstood. I have a 6 year old child who has a undetermined form of autism (PDD-NOS) and is mainstreamed. He has a problem with speech and socialization. There is a lot of ignorance out there. People talk 'down' to him or are condescending because they don't understand his actions sometimes - that bothers him. I would prefer people to understand that he isn't all that 'different' but has some special 'requests' - ex. no loud noises (screaming or loud talking hurts his ears) and please don't crowd him or touch him without him knowing. My son plays soccer, loves NASCAR and does most things a boy his age likes to do. Please don't talk 'around' or 'down' to him, talk to him. Please don't feel sorry for him, engage him and you might learn something. You may also be surprised to see what a happy child he is, being himself! It would also be helpful if some of this 'awareness' was focused around raising money to help treat the children who need it NOW. I wouldn't want to change the person my child is, but I would like to make his life easier with Speech therapy, OT, etc. We are lucky enough to be able to work it out, but other parents are without any help.
Click to view yoshiyoshi's profile yoshiyoshi 61 posts since
Sep 14, 2007
Reply 11. Re: Jenny McCarthy and Holly Robinson Peete's Fight to Save Their Sons Sep 17, 2007 9:01 AM
in response to: lariedg
Larie that's what I've been spending the last week on these boards trying to advocate. I have Asperger's Syndrome, and am 25. I find alot of the same things your son finds frustrating, frusterating to me as well. As far as loud noises are concerned, don't you find it so utterly frusterating when you go out somewhere with your son, and ask that he not sit next to loud children? You would think it'd change as someone who becomes an adult, but it doesn't seem so. Although I am told I look 5 years younger than my own age, here's to hoping that lasts! LoL

I have a hard time talking to other adults, because they come off as very condesending to me. I live in a rather high-class suburb, so everyone is obsessed with trends and acting as if they're better than everyone else, cause they have money. So alot of the parents here feel they have entitlement, so they think their children (I mean typically Neurotypical children) have every right to create noise and stress in public places like resturants. If it's not, "Well you're not a parent so I don't have to listen to YOU!", it's some sort of pity thing when I explain it's because I have hearing sensory issues due to Asperger's Syndrome.:|

Your son sounds really cool. I'm curious is he into Pokemon? The creator of Pokemon has been diagnosed has having Asperger's Syndrome, and I've noticed alot of young boys on the spectrum really relate to the Pokemon culture. I also happen to really like video games, if you buy video games by Nintendo, very few of them are that violent..or even go up past a Teen raiting. I think your son might find the graphics too kiddy though, I hear that alot from guys who play video games and complain about Nintendo. The reason the characters look kiddy is basically, the majority of the games sold by Nintendo are made in Japan. Japan is known for having a unique culture, which among other things, is obsessed with cute. Which is why Japanese culture is so popular with girls.

I hope some of my suggestions about things I like have been of help. One thing about Aspies, is they tend to ramble on about whatever their particular interests are. I appreciate your support in advocating for Neurodiversity.
Click to view brenstu's profile brenstu 1 posts since
Sep 17, 2007
Reply 12. Re: Jenny McCarthy and Holly Robinson Peete's Fight to Save Their Sons Sep 17, 2007 9:20 AM

I am excited to see Oprah on Tuesday September 18th! I saw both Jenny and Holly on the VIEW last year. I thought what they had to say was interesting and Rosie even mentioned that she would like to team up with them both and do a special on Autism dealing with the myths and rumors. I personally, am looking forward to seeing the Oprah show with these ladies. Whatever it takes to keep Autism in the spotlight so that more laws can be created in protection of ALL children with special needs not just Autism.


My son was diagnosed (PDD-NOS) 5 years ago, it was not a shock, I knew it in my heart and had him tested. I worked with the school at age 3 through the preschool committee on special education and put together a plan for him with Speech and Special Ed.(The school pays for these services in NY) Once he moved into the school aged program, his preschool plan was carried into the school. My child is in an integrated general education, with an IEP (individual Education Plan) class for the last 3 years. He is excelling due to this integration. Our team, within the school, his general ed teacher, speech pathologist, special ed teacher, psychologist and of course the principal are all a wonder team that I have been working with. With their support at school, and their teaching of diversity throughout the school, the children have learned acceptance and tolerance of those not like themselves.


There are no cookie cutter solutions with any child of special needs. I think it very important that Autism be kept in the spotlight, no matter if it is a celebrity or a soccer mom next door.


I can't wait to see Oprah on Tuesday September 18th!

Click to view ambitionn's profile ambitionn 3 posts since
Sep 17, 2007
Reply 13. Re: Jenny McCarthy and Holly Robinson Peete's Fight to Save Their Sons Sep 17, 2007 9:54 AM

You need to know that autism kids are getting well. Yahoo Groups on Autism have many forums that talk about the many ways to get your child well. My kids are now all in regular school with no modifications. Its happening all the time. Have faith, and learn.

Heidi

Click to view renafield's profile renafield 1 posts since
Sep 17, 2007
Reply 14. Re: Jenny McCarthy and Holly Robinson Peete's Fight to Save Their Sons Sep 17, 2007 10:52 AM
Again, I am so glad that Oprah is finally starting to shed light on Autism with a second show on the topic this year. I will be interested in seeing the show. From seeing the promo clip about it, again it seems that the focus is only on regressive autism. I hope I am wrong about that impression. ***Oprah, Autism is not always regressive and it is not always severe and is not always a miserable existance. If you only show one type and one perspective, your show is not representing the full spectrum and the varied expereinces. To know one person with Autism, is to know one person with Autism*** I hope you also show the hope and beauty of our children this time around and consulted with people other than Autism Speaks. They don't speak for many families.
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