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Great show !! Thank you for opening our eyes and making us be more aware and sensitive about autism. Thank you again for your courage and inspiration.
Great show !! Thank you for opening our eyes and making us be more aware and sensitive about autism. Thank you again for your courage and inspiration.
Great show !! Thank you for opening our eyes and making us be more aware and sensitive about autism. Thank you again for your courage and inspiration.
Great show !! Thank you for opening our eyes and making us be more aware and sensitive about autism. Thank you again for your courage and inspiration.
Dear Jenny and Holly,
First of all thank you soooooooo much for going on oprah and telling your stories.It was pure inspiration.My son was diagnosed with autism spectrum disorder just this summer.I suspecteded it way back when he was about 2 years old but the pediatritians kept telling me he was okay.I finally forced his dr to set up an appointment with a specialist and sure enough they said that he was autistic.Now during the observation the dr said he was very high functional,and was impressed with what he could do.I'm a stay at home mom so i've been home with him all the time and so i worked with him on my own,That's where my motherly instinct kicked in.I knew somthing was wrong and know one wanted to help me so i just took it upon myself to help him.When he wouldn't look me in the eyes i lifted his head up so that whenever he tried to communicate with me he would look me in the eyes and now when he talks he looks me in the eyes.When ever he tried to talk with me and couldn't i'd have him watch his older brother talk to me and then he began to copy him.Those were just a couple of the many techniques i used on him.He talks alot now and is more social then he's ever been.He just started kindergarten and so far he doesn't need an aid like we thought he might.He's writing and reading now it's AMAZING! To tell you the truth i think my oldest son somewhat brought him out of his "autisum".He related to him the most.He copied him quite a bit because for some reason he knew how to bring him out.He got him to communicate better and he helped us to understand him because he understood him.I feel i'm one of the lucky ones because one, he's doing great now and two, i just didn't give up on him and three, even though the drs said he was ok i listend to my gut and used my own techniques with him.The drs even said what a great job we've done with him.I wholeheartedly agree with the "mommy instinct".Always listen to your gut.I was so glad to see both of your sons are doing well.Thank you so much for giving us all hope.Another big thanks for taking on the issue of immunizations as well.I hope that the medical community listens to our pleas and understands that it's not as you said"one size fit's all."
always,
Jennifer
Jenny and Holly,
Jenny and Holly,
Jenny and Holly,
Reply
23.
Re: Jenny McCarthy and Holly Robinson Peete Answer Your Questions Sep 18, 2007 10:42 PM
Hi, my mother is a retired pediatric practitioner, who advised me long ago to never let my kids have vaccines with mercury in them, which another name for thimerosal. My pediatrician advised me last time I recently asked that there would be a string of flu vaccinations this fall that would have the mercury component in it that is the subject of controversy now, and to ask when coming in for flu vaccinations whether it is in there. My craziest fear is if everyone involved at the doctor's offices are even aware. The last vaccination I had for my six month old son, when I asked prior to his shot if the shots did or did not indeed have mercury, I was told by the nurse they did not, even after her checking with others. Then the nurse practitioner came in and stated that truthfully it did, but in such a small dosage, even "less than a can of tuna", and could not harm him. And so my question is how much is safe at all, and how do we know to trust the health care professionals on their individual judgements on what dosage is acceptable if any at all? My son is due for more vaccinations this week, Thursday a.m., and I am terrified to go into doctor's office for the vaccinations. Help educate us other moms, please!
My son was diagnosed with autism three years ago at age 3. I have never felt comfortable with this diagnosis even though I know my son is different and does have some of the autism "red flags." The pediatrician that made the diagnosis was not thorough - she made her diagnosis after about 15 minutes with my son - which I have learned is not how autism should be diagnosed. Rather than accept her questionable diagnosis, I began my own search for answers - of course, on the internet. This three-year search has led me to the conclusion that there are a growing number of kids with symptoms like my sons - whether you call it autism, asperger's, dyslexia, ADHD, a receptive-expressive language delay, auditory processing disorder, hyperlexia, the list goes on. All of these disorders occur in the same part of the brain. No one seems to know what causes any of them. My son has a phenomenal memory and is really advanced in reading and math - but his language is severely delayed and eye contact and normal social relationships don't come naturally for him. Like Jenny McCarthy, I vacillate between determined to help my son and guilt-ridden for letting this happen to him, all the while searching the internet for help, for answers, and for support.
I have tried and considered so many treatments, supplements and diets. The gluten/casein-free diet is a huge undertaking (particularly for someone whose cooking skills are lacking). My son is a picky eater and the few things he does eat are dairy and wheat. How can I even begin to try this? Also, Jenny mentioned yeast - my son had thrush as a baby and then yeast infections in his diaper-area for months as a toddler. He does not have any outward symptoms of yeast now, but how do I know if he has too much yeast in his body and if so, what can I do about it?
Reply
25.
Re: Jenny McCarthy and Holly Robinson Peete Answer Your Questions Sep 18, 2007 10:58 PM
Hi Jenny and Holly, Thank you so much for an amazing show. I am a preschool teacher with a child I highly supsect has autism in my class. He is getting intervention which is wonderful! I'm just wondering if there is a dietary connection for him also and was wondering if you feel it is appropriate for me to tell them about your findings on gluten and casein. This child holds a very special place in my heart and I would love to help him in any way I can. I have a 14 year old son who was diagnosed with ADHD,however looking back now ,I feel he too is on the autistic spectrum. I never gave up with Adam and stimulated him in many different ways just like you Jenny....today he is an active high school student,very bright and on the freshman football team. You both are an inspiration to mothers everywhere. I also agree that certain children are biologically predisposed to reactions to vaccines! I see it so often( really more than ever ) in the preschool setting. People who dispute it and say why doesn't it happen to all children should talk to teachers.Children display so many behaviors now that we didn't when we were kids. It's mandatory that we continue to investigate and pursue the correlation between food additives,chemicals and environmental factors that are effecting children on a daily basis. Thank you again for opening our minds and hearts. Julie Bussell
Just comments. No questions. I want to thank you both for appearing on the show today and I would like to thank Oprah for having this topic. It was very refreshing to hear of other families branching out into "alternative therapies" rather than just reaching out for a new drug. I am a mother of two boys, 7 and 11. They are both great. My 11 year old son has asperger's syndrome. The most annoying comment I hear is that, "we are lucky it is only aspergers syndrome". Is that lucky, he is still on the spectrum? Anyhow, he was diagnosed at age 4 1/2. My 7 year old son is neurologically typical. My child who has autism also has an intolerance to gluten and casein. The day of his diagnosis I went to the library and found as many books as I could about the subject of autism and then I went home and got on the computer to google as much information as I could. I immediately found lots of different therapies including the gf/cf diet. That one struck me immediately. Within two weeks of his diagnosis he was going to therapy for OT, PT and speech. At home I started changing his diet by eliminating ALL dairy products. I saw changes within a couple of days. Within months I started eliminating gluten and saw that the fog was lifting. From there, the diet progressed into a whole foods, organic diet, eliminating processed sugars, food colors and preservatives, still maintaining the gf/cf diet. We do not buy any processed foods. Not only was he developing neurologically by being calmer and clearer, but physically as well. He was gaining a little weight, has much better muscle tone and coordination. He can feel pain and the sensation to have a bowel movement and has bladder control. This diet in particular has been a life changing event for our entire family. We all eat by this diet in our house and anyone who visits us eats what we eat and no one knows that they are eating anything special. It is just simply very fresh, real food. Ever since we changed the way we eat, we see the eyes of skepticism everyday by, family, friends and doctors. It has not always been easy, but I have determined that they do not have to live with us so why should it bother them the way we eat (of all things) and why should I let them bother me. I have stuck to my guns and maintained this diet, because I want my child to grow up to be healthy and happy. We see the changes in him. We even see the changes in ourselves. We simply feel better. My son, now that he is older, is seeing his own changes and strides that he has made in himself and can tell us how he feels. This makes all the hard work and effort worth while. Don't get me wrong this diet is not the cure all that ends all and we still have our bad days, but I can say with total honesty that the good days far outweigh the bad days. I give a lot of credit to my husband. He has been a great dad and husband. He was not a cook prior to this diagnosis and has since become an excellent cook. We both work so we share the responsiblity of grocery shopping, cooking, routine care of our children and housework. We also share the responsibility of helping with homework. He has supported me and our children through thick and thin. I have to say that it has been important for us as parents to try to trust someone to watch our children so we can take a break once in a while and be alone together. We found that it was not only good for ourselves, but our kids enjoy the change of scenery too. This is our team effort. I think we are one of the lucky families. We are not wealthy in dollars, but we are wealthy in the fact that we keep smiling, laughing and living life to the fullest every day. That is our goal. Bless you for your time today and may your families and all families struggling with this illness become healthy,happy and thriving individuals.
Twenty four years ago, my daughter Nichole was born a normal birth. She was the fifth child of six. She was born in Billings Montana. I took her to the pediatrician at her 2month check up and she was given her first DPT. Within a few days she had developed Apnea and was put on an Apnea moniter. I had been through this routine of children born and immunized with my other children. I wasnt a new mother. I asked the pediatrian at her 4month check up to please hold off giving her the vaccines as I was still dealing with the Apnea on a day to day basis. The moniter was keeping her alive but I was exhausted. He made me feel stupid for asking and said the vaccines are completely safe. Within 2 hours of recieving the second DPT, she had established a 105 fever and was convulsing. The episode put us in the hospital for a few days and when my baby came home with me, she wasnt the same baby that recieved the shot in the pediatricians office. I had her diagnosed by a childrens neurologist and was told she had a syndrome that Jewish children get called Riley Day Syndrome. To make a long story short. She was misdiagnosed and I was told to put her in a home for the disabled and walk away. I didnt. I fought for knowledge about the brain and went against the grain of the physicians like Jenny on your show today. I researched as much as I could as the computer was not available to me then. I am divorced and on my own have taken care of this beautiful girl. She is lovely and so much fun. Jenny and Holly, I am so proud of you for taking a stand. I did too so long ago until the drug company made me sign a gag order to never speak in public or publish anything anymore regarding this matter. The day I accepted the horrible settlement from Wyeth laboratories to shut up about vaccines and brain injuries and autism, I felt victimized and I felt as though I was letting down future children and humanity. I am so sorry I didnt continue the great fight maybe it would have saved you and your children from this torment. I wrote newspaper articles and went to legislature and even informed physicians and chiropractors of this grave matter. My medical bills for Nichole were so devistating that I accepted the settlement . I am so sorry.
Regards,
Debra Thelen
Fallbrook California
Jenny and Holly,
I have tried over and over to get an email in here yesterday, but the website, or my computer was acting up. Here is what I wanted to say. Jenny, everything that you had said about your sons symptoms yesterday describe my son to a perfect t, except the seizures. My son is 12 months old. My so does the spinning of the wheels over and over. Loves the door knob. Loves to stare out the window while making scratching like motions on the window. He always looks in a daze. I mean I have had to repeat these symptoms so many times, its crazy. Every one tells me, "oh, he is fine" "he is just slower", "he will grow out of it". I want to just smack them and say, hey, look you are not with my son everyday. you have no idea what he is like. He use to say dada all day long, and he was saying mama. one of my proudest moments, now nothing. not even trying to babble. Here is the scary part. He hasnt even been diagnosed. I have an appointment, but I have to wait 4 months. 4 months of hell, 4 months of not knowing. I started to cry watching oprah yesterday. it is so scary, to think my son may have autism. SO my question is, what do i do? how can i remain calm, how can i livethe whole 4 months until then? its driving me crazy
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29.
Re: Jenny McCarthy and Holly Robinson Peete Answer Your Questions Sep 19, 2007 1:30 AM
Hi Jenny and Holly, The Show was Great! I have a 11yr. old daughter named Sonya. When she started school at 5yr old. She Had alot of trouble with the school. They did some test on her. The test showed that Sonya was Autism Spectrum. I then took Sonya to the psychologist he also tested Sonya it wasn't Autism Spectrum. Sonya has diagnoses of Mild-Mental retardation, ADHD, Oppositional defiant disorder and Intermittent explosive disorder. Along with allergies and asthma. Does anyone of your child have to take alot of medicines? I know my daughter does. She doing okay so far. But the doctors had said I still got along way because, she hasn't yet started her period. They said that it could throw her into chemical
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